МЕТОДЫ РАБОТЫ С ОБУЧАЮЩИМИСЯ С РЕДКИМИ ЗАБОЛЕВАНИЯМИ В НАЧАЛЬНОЙ ШКОЛЕ ПО МНЕНИЮ УЧИТЕЛЕЙ НАЧАЛЬНОГО ОБРАЗОВАНИЯ

Abstract

Abstract: A child with a rare disease can attend a public primary school with integration departments and a school with an educational center. Regardless of the type of institution he attends, a procedure should be prepared. 

The conducted research aimed to describe a proposed procedure for dealing with students with a rare disease. The main research question was: How should the procedure for dealing with a student with a rare disease in primary school be structured in the opinion of early childhood education teachers?

The research was based on quantitative orientation, using the diagnostic survey method, the survey technique, and the author's questionnaire tool. In the research 38 early childhood education teachers participated. According to the respondents, the purpose of preparing the procedure for dealing with a student with a rare disease is to ensure their safety during their stay at school. It should primarily contain the characteristics of a given rare disease, along with a description of the student's functioning and characteristic symptoms of the disease affecting his/her learning.